Posts

Showing posts from February, 2025

9 Years Later and Still Standing

Image
Nine years since my date of diagnosis.  Nine years since I had to stop hiding that I wasn’t ok.  Nine years since I realized I wasn’t dying.  Nine years since it was confirmed that Áine would never know me as I once was.  Nine years since the doctor said to me, “we have good news and we have bad news. The bad news is that you have MS.  The good news is that it is the best kind of MS.” Well, those of you that know my story know it wasn’t really the best kind of MS.  They were referring to what used to be known as Relapsing Remitting Multiple Sclerosis.  Supposedly, I could go on for years and years without any new disease activity with just some disease modifying drugs.  It could lay dormant for years and years.  I recently spoke with a man my age who has had MS for over 20 years with no symptoms until he wasn’t.  His life blew up, his body started to quit on him, his mind wasn’t far behind.  He had to stop working and coaching his k...